(My Personal Endometriosis Story)
On April 6th, 2013 my husband dialed 911 and I was rushed via ambulance to Lenox Hill Hospital in NYC. I was scheduled for a routine endometriosis surgery with Dr. Tamer Seckin of The Endometriosis Foundation of America. Because of my experiences with my 2 previous endometriosis surgeries one in 2003 with Dr. Dubin in Los Angeles and one in 2006 with Dr. Redwine in Oregon, I though that I’d probably leave the hospital within 7 days.
3 MONTHS LATER! I left Lenox Hill Hospital for the final time, weighing 89lbs with a catheter bag attached, in a wheel chair, after 4 major surgeries with a team of surgeons, blood transfusions and nearly losing my life. I remember SCREAMING BLOODY MURDER during my first shower after being hospitalized for 3 months, I was washing my hair while sitting in a chair in the shower and BIG CHUNKS OF MY HAIR were FALLING OUT INTO MY HANDS. It was like living in a REAL LIFE HORROR MOVIE. I was SO THIN THE SKIN WAS HANGING OFF OF MY BODY and ARIEL HAD TO PUSH ME IN AN OFFICE CHAIR WITH WHEELS DOWN OUR 12 FT. HALLWAY, JUST TO GET ME TO THE BATHROOM.
After Decades of Suffering in the Terrifying and Horrific Pain of Endometriosis Symptoms and Disease I was Suffering in a Whole New Nightmare.
It’s been a long journey on the road of recovery back to my life. I am looking forward to sharing my journey with Endometriosis with you all in my NEW BOOK Coming Soon!
Life in Surgical Menopause is not easy. Not being able to bear your own children because of Endometriosis and Infertility has not been easy to accept. I still struggle with it. I suffered with SEVERE PTSD for over one year in FEAR that I would be taken back to the hospital again and that I would DIE. It was a very terrifying time in my life. I’m SO GLAD it’s over.
I have overcome great ordeals and I have a wonderful husband by my side who supported me through it all. Without him I would not be here. While I fought my battle with my health. He fought the battle with Lenox Hill Hospital Staff to make sure I left the hospital alive and not in a body bag.
OVER 176 MILLION WOMEN WORLDWIDE SUFFER IN SILENCE FROM ENDOMETRIOSIS #BETHEVOICEFORENDO
The #ENDOWARRIORS hashtag was created by me on my original twitter many years ago. I deleted my original twitter in a state of insanity when I was released from the hospital. I had been tweeting for hours, days, weeks, months none stop about Endometriosis to raise awareness and couldn’t take it anymore. I was engulfed in a world of Endo and needed to HEAL. I am happy to see today that it has become a worldwide used hashtag and women all over the world are becoming educated thanks to all of the Amazing Endometriosis Warriors who stepped up to the plate and told their stories as well!
Wear a YELLOW RIBBON FOR ENDO IN HOPES OF A CURE. MARCH IS ENDOMETRIOSIS AWARENESS MONTH.